Showing posts with label Information. Show all posts
Showing posts with label Information. Show all posts

4/17/12

When you see me by Mary Hastings

WHEN YOU SEE ME
by Mary Hastings
written May 2003

When you see me on a "good day"
I may look as if nothing’s wrong,
But I, myself, am very aware
That the energy won’t last long.

You may think that I am lazy,
Or I just don’t like to try,
Or maybe I am just depressed,
When sometimes you see me cry.

You may not understand me,
It’s not easy to explain,
The struggles that I so often endure,
As I live each day in pain.

People may offer their opinions,
Thinking that I just need some advice,
Yet they don’t really comprehend,
Although they are trying to be nice.

What for some may be so easy,
Is almost impossible to me,
But because I may look healthy,
Many around me fail to see.

Perhaps it seems that I’m sloppy,
If I would only take more pride,
It’s sad that many don’t stop to see,
The person who is inside.

Planning things is so hard to do,
With each day uncertain fate,
The best that I can do is try,
And oftentimes I have to wait.

Life can be so stressful,
Even when you have your health,
Many people cannot even imagine,
Giving up their dreams and wealth.

While some people may worry,
How to fit everything into each day,
Others of us must struggle,
To even find a way.

So often misunderstood,
Some say that is must be "in my head,"
Yet there are days that it takes all I have
To even get out of bed.

You’d think that if one is weary,
Then why not just take a nap,
But the fatigue at times is so severe,
That nothing seems to help.

If exercise were the answer,
I would just move into a gym,
But intolerance and unbearable pain
Makes it difficult to stay trim.

That’s alright just take a pill--
Medications can always do some good,
However, sometimes the effects are far worse,
Oh, but how wonderful it would be if I could!

Living each day fighting defeat,
Knowing that you can’t give up and quit,
Even though it gets hard to do,
Find ways of accepting it.

I guess it would be a better thing,
If there were a little more support,
Everyone longs for acceptance and love,
As they keep their life in sort.

If I could make the world aware,
Help them to see things in a new light,
Be careful on what they base their view,
That they may receive a new insight.

Then maybe when someone else comes along,
Who is going through something unknown,
They may not feel so hopeless and scared,
And will know that they’re not alone.

Whether it be a terminal thing,
Or something chronic with no known cure,
There are many processes that will be faced
In this we can rest assured.

The grieving over loss is hard,
Whatever the loss may be.
What may be just a bump for you,
Could seem like a mountain to me.

Everyone responds so differently,
We all have our own ways to cope,
But the one thing that we must never do,
Is believe that there’s no hope.

For I faithfully trust in God above,
And no matter what the future may bring,
I know that He is holding my hand,
And He’s in control of EVERYTHING.

~Permission granted to post~

12/5/09

Christmas Angels

'Angels' in Greek mean 'Messengers'. In Bible, heavenly angels are mentioned as messengers of god. Christmas angels are perhaps the most popular form of angels that are used in our celebrations. Angels are believed to be immortal, who live in Heaven, and act as intermediaries between God and Humankind. Traditionally, pictures and poems on angels portray them having human bodies with wings sprouting from their backs. 'Wings' are said to symbolize Innocence, Virtue, Purity, Peace and Love, which place them above Humans though they are still under God. It was the Hebrew Bible or the Old Testament of Christianity, which first mentions that angels had a human body and angel wings and could fly.

According to the New Testament, when people are sorry for their sins, angels rejoice. In Bible, nine ranks of angels are mentioned with Seraphim and Cherubim angels on top. Angels are headed by a chief angel known as an Archangel whose name is Saint Michael. We all have our guardian angels or angel guardians who protect us, look after us and comfort us in times of distress. It was in 1100 to 1200 AD when Christian doctrine about angels evolved rapidly, as in the teachings of Saint Thomas Aquinas. Saint Thomas believed that angels fill the gap between God and mankind; they are countless and immortal. According to Saint Thomas, angels have perfect knowledge except things that can depend on human choice and things that only God knows.

They were quite instrumental in birth of Jesus Christ and hence, play an important role in Christmas celebration and festivities. Angels were the ones that brought us the news of the birth of the Christ child. Gabriel, the heavenly Christmas angel brought the divine news to Mary and revealed that she was chosen to bear God's son. Another angel informed Joseph that he should marry Mary and look after the Christ. According to a legend, God appointed a small group of tiny angels, who were just learning their angel ways, to watch over Joseph and Mary on their journey to Bethlehem. Tiny angels did all they could and tried to do their best but could not help the couple to find shelter in the inn in the over-crowded town. Finally, they had to make do with the inn's stable.

They were so excited that they were to witness the birth of God's Only Son that flew closer to earth and sang sweetly. The fastest among them caught sight of the newborn child from stable's roof and instantly understood their mission was to herald the birth. They were so filled with joy and mirth that they burst into a glorious thanksgiving song that reached the heavens and was so melodious that it could be heard all over the Earth. A Christmas angel appeared to the shepherds near Bethlehem about the Christ Child's birth too. We still see Christmas angels singing and playing music in Nativity scenes who look so cute and benevolent that they catch young one's attention and fascination instantly.

2/22/09

Fibromyalgia symtoms

FIBROMYALGIA
http://www.fibrofix.com/
(Chronic Fatigue Syndrome/Restless Leg Syndrome)
*Indicates most prevalent
Symptoms

* Brain Fog
Trouble concentrating - can't recall words (anomia) /names - using wrong word - memory lapses - lose track of present location - overwhelmed performing multiple tasks - low mental acuity - varies from day to day

* Pain
Usually both left and right side - in soft tissues - feels like "bones hurt" - generalized - radiating - gnawing - numbness, tingling, prickling, "pins and needles" - aching/burning in hands, arms, feet, legs, and sometimes face/jaw - some pain always present - firm touch can cause discomfort - worse in morning, improves throughout day, worsens at night - affected by activity level, weather, sleep patterns, stress, and foods - burning skin

* Stiffness
Worse on awakening and after sitting or standing in one position
muscle tightness/lack of flexibility, especially legs, back, shoulders

* Fatigue
Chronic - moderate/severe/extreme exhaustion - disabling - muscle twitching - muscle weakness - shakiness - long periods of sleeping - strong need to fall asleep/a quick nap often refreshes, but unrelenting fatigue returns

* Exercise intolerance
Too much or wrong exercise may worsen FMS symptoms

* Emotional/Serotonin Reuptake
"Serotonin Cluster of Symptoms" :
Anxiety/panic - depression - obsessive compulsive - procrastination.
Not all Fibros have these, but if have one of them, and it came with FMS, they usually have the cluster of all four. Caused by Serotonin Reuptake. Can be effectively treated by taking a good SSRI med - at night. (over-the-counter alternatives are 5HTP and SamE)

Emotional liability (change) - easily irritated/dissatisfied with work, home and life in general - "negative minded", depersonalization (world feels vague, not real), trouble recognizing faces.

* Weakness
Body wide - suddenly drop objects - clumsy hands - poor grip - extreme weakness all over

Coordination
Impaired - can be in all areas - can't pick feet up

* Mobility
Forward body posture /typing, desk sitting, assembly line work can cause chest and upper body (thoracic) pain/dysfunction. Unable to move body if severe

* Disequilibrium / balance
Tilting causes disorientation/nausea - dizziness - light-headedness - not able to adjust quickly

* Tender Points
Painful, sensitive locations on the body corresponding to branching of the arteries.

Restless Leg Syndrome
Periodic limb movement disorder - during sleep or awake

* Sleep
Trouble falling asleep - waking at all hours - not rested when awake - easily awakened - abnormal sleep patterns - chronic insomnia

* Sensitivity
Over-sensitive to smell, noise, bright or flickering light - normal sounds can be excruciating, certain foods, medicines - change in weather - feeling cold or hot when others are not, "paresthesia" = abnormal neurological sensations
"hyperesthesia" = increased neurological sensations

* Hair
Thinning - dry - dull

* Fingernails / toenails
Soft and break - ridges

Skin
Itching - rash - small "rice like" bumps - nicks bleed more easily - greasier skin - Deep painful blemishes on face, torso, arms and legs - nose tender/outbreaks on the sides, sarcoma (sub-cutaneous painful swelling that can't open to surface). Blisters on scalp. Pilomotor phenomenon (goose bumps).

Perspiration
Insufficient is more common, but some FM's sweat profusely. May be very acidic, causing intense itching.

* Hands / Feet
Numbness, tingling - not flexible - palms and soles of feet blotchy - poor hand-eye - calluses and corns on feet more painful and irritating - dry - in severe FMS hands can lose all activity and turn back toward arms, palms first

* Swelling
Sensation of swelling (edema) in hands and feet - ankles, calves - throughout body

*Headaches
Chronic - "ice pick" - muscular (tension) and severe migraine headaches - often from trapped HA in narrow passages in sinus. It swells, creating severe pressure.

*Eyes
Problems with focus/skeletal tracking muscles of the eyes - "visual confusion" and nausea. Vision not clear - like looking through Saran Wrap - frequent prescription changes - don't sparkle. Dry or burning.

Ears / Hearing
Reduced acuity - feel stuffy - tinnitus (ringing or whining in ears) - waxier - may feel damp inside

* Sinus
Chronic problems - closed-up feeling in nose and sinuses - sinus infections - easily catch colds and flu - chronic runny nose - non-allergic rhinitis = nasal congestion / discharge and sinus pain - post nasal drip causes throat problems

* Mouth
Tongue sore / swollen taste buds - tender gums/backside of lips and roof of mouth blistered - dry - white coat on tongue like soft sand grains as taste buds shed abnormally - excess mucus - yellow scum on teeth

Saliva
Very acidic - pH test may frequently show only 5.0 and up. Ideal body pH is 7.40

* Teeth
Grinding and clinching during sleep - splitting /cracking - require caps


TMJ - Temperomandibular Joint Dysfunction Syndrome

Throat
Trouble swallowing - weak, coarse voice - choking - spasms if food too dry

*Acid Reflux/GERD
Often not relieved by proton pump inhibitor meds - ulcerated esophagus

* Irritable Bowel Syndrome
Alternating constipation and diarrhea - spastic colon - cramps - bloating - ulcerative gastritis

* Urination
Very frequent - incontinence/leaking - urgent - typically in the absence of a bladder infection - odd odor or color, female urethral syndrome

Heart
Rapid or irregular heart rate - congestion can mimic heart blockage symptoms

Orthostatic Intolerance
Drop in BP and heart rate on standing - tilting backward causes disorientation

Lungs
shortness of breath - wheezing - deep hard cough

* Neck
Stiff - cracks & pops - sore with movement - grinds

Spine
Bulged/herniated discs in lumbar - stiff - sore - back "goes out" - weakness - pain

* Axial skeletal pain
In cervical spine, anterior chest, thoracic spine, or low back

Stenosis of Spine (narrowing inside spinal canal)
tests show but may be due only to lack of fluid

Carpal Tunnel
EMG tests will show this, but with treatment for Fibromyalgia can clear up immediately

* Cartilage
grinds down - knees, etc. noisy, rough, painful

*Costochondralgia (costochondritis)
ain where ribs meet sternum, mistaken for heart disease


* Weight gain
Puffy all over - gain for no reason


Pelvic / Female Reproductive Problems :
No periods - skipped periods

Dysmenorrhea - difficult and painful menstruation - cramps

Dyspareunia - painful sexual intercourse

Dysuria - painful urination

Bladder Infection

Endometriosis - tissue resembling uterine mucous membrane occurs in pelvic cavity

Vulvadynia - unprovoked burning, stinging, irritation or rawness of the female genitalia

Infertility

Hysterectomy

Libido (physical passion) - can be low or non-existent

Vaginal lubrication - can be inadequate or non-existent

Manifestation of symptoms: severity, presentation and location lead to separate diagnosis, although believed to be related to FMS:

Myofascial Pain Syndrome (MPS)
very painful spots (trigger points) form in taut bands in muscles or other connective tissues

Sleep apnea

Mitral valve prolapse (MVP)
One of the valves of the heart bulges during a heartbeat - causes click or murmur

Reynaud’s phenomenon
Intermittent bilateral attacks of ischemia (low oxygen state) of fingers, toes, ears or nose, marked by severe pallor, paraesthesia and pain. Cold or emotional stimuli trigger it / heat relieves. A circulatory problem affecting the small blood vessels of skin.

Sicca
dry mucous membranes, as of the eyes and mouth

Multiple Chemical Sensitivity Syndromes
Ulcerative Gastritis
Ulcerated Esophagus

Related / other names

Chronic Fatigue Syndrome (viral precursor to FMS)
Chronic Fatigue Immune Dysfunction Syndrome
Myalgic Encephalopathy
Fibromyositis
Fibrositis
Muscular Rheumatism
Musculoskeletal Pain Syndrome
Myofascial Pain Syndrome
Nonarticular Rheumatism
Periarticular Fibrositis
Rheumatoid Myositis
Tension Myalgia



May be related or subset of symptoms:

Sjogrens
Polymalgia rheumatica
Reflex Sympathetic Dystrophy
Chronic Obstructive Pulmonary Disorder
Gulf War Syndrome / some cases
Meniere's
Peripheral Neuropathy / some cases - cannot feel heat, cold, etc, correctly in extremities
Rheumatoid Arthritis - recent research shows deficiencies of Hyaluronan in joints
Osteoarthritis

Often mistaken with:
Hypothyroidism (low thyroid production)
Systemic lupus
Multiple Sclerosis
Rheumatoid Arthritis
Osteoarthritis
"Growing pains" - especially if the child has difficulty sleeping.
Lyme disease
Post Polio Syndrome
Adult ADD
Hypochondrias is - preoccupation with body health / thinking something is wrong

1/31/09

The Bible at your finger tips

It's the bible at your finger tips. Check it out at http://www.biblegateway.com/versions/?action=getVersionInfo&vid=31 .


Emergency "Phone" Numbers: These are more effective than 911!!


When.......... You are sad, phone John 14
You have sinned, phone Psalm 51
You are facing danger, phone Psalm 91
People have failed you, phone Psalm 27
It feels as though God is far from you, phonePsalm 139
Your faith needs stimulation, phone Hebrews 11
You are alone and scared, phone Psalm 23
You are worried, phone Matthew 8:19-34
You are hurt and critical, phone 1 Corinthians 13
You wonder about Christianity, phone 2 Corinthians 5:15-18
You feel like an outcast, phone Romans 8:31-39
You are seeking peace, phone Matthew 11:25-30
It feels as if the world is b igger than God, phone Psalm 90
You need Christ like insurance, phone Romans 8:1-30
You are leaving home for a trip , phone Psalm 121
You are praying for yourself, phone Psalm 87
You require courage for a task, phone Joshua 1
Inflation and investments are hogging your thoughts, phone M ark 10:17-31
You are depressed, phone Psalm 27
Your bank account is empty, phone Psalm 37
You lose faith in mankind, phone 1 Corinthians 13
It looks like people are unfriendly, phone John 15
You are losing hope, phone Psalm 126
You feel the world is small comp ared to you, phone Psalm 19
You want to carry fruit, phone John 15
Paul's secret for happiness, phone Colossians 3:12-17
With big opportunity/ discovery, phone Isaiah 55
To get along with other people, phone Romans 12
For dealing with fear, call Psalm 47
For security, call Psalm 121:3
For assurance, call Mark 8:35
For reassurance, call Psalm 145:18


ALL THESE NUMBERS MAY BE PHONED DIRECTLY. NO OPERATOR ASSISTANCE IS NECESSARY. ALL LINES TO HEAVEN ARE AVAILABLE 24 HOURS A DAY. FEED YOUR FAITH, AND DOUBT WILL STARVE .

1/27/09

Morning Stretches

Diaphragmatic Breathing

Laying Down

Allow your chset and shoulders to relax, breathe in through your nose, pushing your belly button up to the ceiling-keeping the chest and shoulders quiet. Exhale, and let your belly fall. You may place a phone book on your belly to ensure you are completeing correctly. Watch for the phone book to raise and fall as you breathe. Inhale count to 4 and exhale to the count of 4.

Sitting and Standing

Allow your chest and shoulders to relax, push your belly into the waistband of your pants and inhale to the count of 4 and exhale to the count of 4. Be sure to check that your shulders and chest are quiet.

Morning Stretches

Ok, now that we have the breathing down remember to do them with each and every stretch. This is very important. The deep breathing will bring oxygen to your muscles and helps heal them. it helps to get rid of Fibro fog too.

The other thing to always remember is to never over stretch a muscle. If the movement hurts your pulling to hard back off a little and wait till that muscle relaxes and move a little futher.
that said:

Stand straight, arms up, head straight and reach to the ceiling with your hands. Legs should be shoulder with apart. Remember to breathe.

Bend over slowly to the floor. As you go down bend your knees slightly. Go down as far as you can and relax, just let your body stretch out on it's own. As you feel your muscles relax go a little further and breathe. Try to touch the floor.

Come up slowly start with your butt and slowly pull up with your back muscles. It's more a roll than a pull up to standing. You can do these as much as you like till you feel your muscle are stretched and relaxed.

Standing Straight, arms out straight even with your shoulders, turn your palm up with your thumbs facing toward your back. Pull your shoulders down and back. Bring your hands down and toward your back, try to bring your hands together in back of you as far as you can, and hold as long as you can. Remember to keep you shoulders down and pulled back. Breathe.

Sitting on your bed or chair. Bring your leg up straight. Hold, then change legs. Try pointing your foot out and in on each leg and breathe.

Sitting on your bed. Put one leg up flat on the bed and the other hanging off the bed. Relax your leg and slowly lean into your leg. Point toes in and out. Relax your shoulders, neck, etc and breathe. Change legs and repeat.

Sitting on the bed, feet flat on the floor. Bring one arm streight up and bend over to your side. Support yourself with the oppsite arm with elbow bent. Relax your neck, keep your back straight, keep your arm paralle to your body and breathe. As you inhale really pull your stomach muscles in and push them out hard on the exhale. As with everything don't over stretch wait till your muscles relax and go alittle further. To switch sides bring your hand around the front of you and lean on the other elbow and stretch the other arm up and over. Kind of like a dance move.

Neck stretches. Sitting on the bed, feet flat on the floor. shoulders down and pulled back. sit straight up.

Hang your head forward, relax, breathe. Slowly bring your head up and back, hold and breathe.
Slowly bring your head straight and turn to the side and lower your chin to your shoulder, hold and breath. Do the other shoulder, hold and breathe.

Tilt your head to one side, relax, hold and breathe. Do the other side.

Remember only go as far as you are comfortable, relax everything, shoulder down and back and Breathe.

Lay on your bed, arms at your side, hands palms up. Stretch out so you are streight and your pelvis is tilted up slightly. Inhale and pull your stomach up and in as far as you can, tilt your pelvis up and tighten up your butt muscles. Exhale and blow out and push your stomach out as far as you can, push your back into the bed. This is equal to doing sit-ups with out hurting your body. So really pull and push with your breathing.

You can add pointing your toe up and down.

I do as many of these as I can.

It really clears your head too.

This one is hard to discribe. Roll onto your side, bring the leg on top back, relax the other leg. Turn your shoulders and arm flat on the bed. Cross your arms under your face and pull with your leg and elbows till you feel a pull in your groin. hold and breath. Change to the other side.
Sit on your bed with your legs in a V. Bend forward slowly, rest your arms on your legs, head down, relax and breathe. As your leg muscle relax go further. If you can put your hands on the bottom of your feet, relax and breath. Then after you have relaxed in that position fold your arms between your knees and relax and breathe. Concentrate on your breathing and relaxing your muscles. Slowly come up using your arms on your legs to help you up back to a sitting position, bring your legs together and breathe.

You're done. I have been doing these everyday for almost 3 months and I feel so much better.

You don't even brake a sweat and you stretch all your muscles without hurting them.

Remember to go slow, pull only to the point before pain, relax everything and do your deep breathing with all of them.

My Disability Story

There are several things to think about before you go so far as to quit your job and apply for Disability. Or if you are already filing for SSI.


Do you have STD (Short Term Disability) at work? LTD (Long Term Disability)? Have you worked at your current job long enough to get FMLA (Family Medical Leave Act)? All of these things will keep your job and an income while you are applying for SSI. To find out about these benefits contact you HR dept. Ask if you are eligible, what percentage of your wage is covered, and how many weeks for each one?


What challenges do you have at work? What things does your employer have to do to accommodate you at work, extra days off, extra training, attention, environment, equipment anything they do special get it in writing and include this in your file.


Were you fired, why? Do you have it in writing? Write a letter with a copy of your termination letter explaining why you were let go. This won my case for me.


What are your medical conditions? Make a list of them and then find a Doctor that specializes in that field. SSI puts a lot of weight on specialist that you see on an ongoing basis. It’s not how many you see, but more how often you see them for what condition. This part is the “kiss the toads’” process. Yuck! Painful and annoying but once you find a good team they can win your case for you.


Are you depressed? Use this to your advantage; they look at this more than anything. See a good shrink, an MD not just a counselor. Get tested by neuropsychiatrist, if you can find the one that does the testing for SSI in your area, great!! Ask the receptionist if they test for SSI review, she will know. I did and it really helped. They will document how your medical condition affects your ability to think and work. I was tested every year until I won.


Talk to your Doctor about supporting you though your fight for Disability. Your Doctor will need to fill out all the papers for STD, LTD and FMLA. Do not quit your job until you have found a Doctor who supports you in the fight for SSI. It is going to be a looonnggg haul and if you have no medical support, you will have no case.


Don't count anything out even the smallest thing should be looked into and documented for your case. Get your Doctors involved and working for you. If they wont, move on. You can't waste time on Doctors who won’t work for you. This is your life you’re fighting for, make them work for you.


Have all your Doctors fill out a work restriction form. This shows that what you are telling them on your case is true and gives them proof of those life changes.


Call your local SSI office and tell them you need help filling out the forms. To locate your local SSI Office go to this site: https://s044a90.ssa.gov/apps6z/FOLO/fo001.jspYou’ll need to bring some info with you for the appt. Things like medication list, Doctor list, ids, and such. If you don't remember all your Doctors, that's fine bring as many as you can remember. Bring a check stub from your job and spouse’s job (if applicable). Before you send, any forms in make a copy of everything sent. You will need this to review with your attorney and for any appeals. If you get help from SSI filling in forms, ask for a copy of everything.


In member, FAQ on the top of the board there are tons of sites regarding Disability and what you need to do. Read all of them. See these too:http://www.socialsecurity.gov/disability/http://www.scottdavispc.com/articles.htm


Get a copy of ALL your medical records as far back as you can. Read them; mark any tests that are missing. If it says you had an x-ray or lab, you will need to include a copy of the written report. Believe me, they’re not always there. Consultations too, get all the records from each of them including any tests they did. You need the actual consultation records not just a copy of the letter to your Doctor. Keep all original records in a file in chronological order from first date seen to current. Make notations of what records where sent to SSI and when. Doctor’s offices might charge you for records, but they will cost less then what your attorney is going to charge you for them. I just chalked them up to a savings in the end. I know you don't want to pay an attorney to get these do you? Believe me attorneys won’t tell you but when you get your settlement requesting medical records will be listed as a deduction on your settlement.


Always keep a copy of everything for your files in order. Medical records and forms separate but in order.


If you are finically suffering, write a letter of hardship now. In this letter, you will need to list your income, bills, and the difference, hopefully to the bad. Include everything, food, gas, gifts, medical costs, medication costs, Over The Counter medication costs you take on a regular basis, everything. Write a letter stating how you are struggling to keep your life going. If you are working send in a copy of your check stub, so they can see proof of your income. When you apply for SSI, you are allowed to make so much a month gross, call your local SSI for a current allowed amount. Is someone helping with your bills tell them how and when this help will end. This will help move your case faster through the review.


Write, not type, a statement of all the ways your life has changed. Keep it short, about 1 page, no spell check, and no grammar check. Include things you can't do that you once could. What simple things do you now need help with, opening a can, taking out trash, cooking, cleaning, can you drive, how far can you walk, how long can you stand? Sit? Do you need a wheelchair, motorized scooter to shop, can to walk? Do you need help remembering medication, paying bills?


If you can have someone who lives or works with you write a statement about how you have changed and their signature notarized. This statement cannot be hearsay but only the other person’s observation of the changes in you since your illness. All these things add up to show how your life has changed and they all need to be listed on your SSI application.


Once your case has been filed you will get a case confirmation letter. This letter is to tell you who will be reviewing your case. Call this person at least once a month. Send in all records collect to date and then any new records at least every 3 months, cert mail addressed to that person, unless you have heard from them about a determination. Call that person the day you send records and let them know they are coming. Make a note of records sent to SSI, as duplicates will be kept with your file making review a slower process, one thing I know you don’t want.


Once you get your first denial letter, which should take about 3 mos. You will have 30 day to file an appeal. If you aren’t denied on the 1st time, you are one of the few lucky ones. While you are waiting for a determination assume you will be denied, keep collecting medical records and start looking for an attorney. You should also keep pursuing treatment to get more definition to your diagnosis and to show continued care.


To find an attorney look in the yellow pages, ask friends, relatives, coworkers you want an attorney that only works on SSI cases. By fed law they cannot take any pay until you win and then they are limited to only a certain amount of your settlement. You do not have to sign the release of information to your medical records. Simply tell them you will take care of this and will not sign.


With your first denial letter, you will get another pack of papers for your second appeal. This is where all your hard work is going to pay off. Give the attorney all the forms for your appeal, a copy of all the records you have sent to date and any current records. Also, bring in the statement you wrote (not typed) of how your life has changed and any other notarized statements from anyone else. Your attorney will review everything with you and make copies of all your records. Your attorney will send in your appeal forms and any records not already sent.


Once this is received, you will get a letter saying who is reviewing this case. It won't be the same person as before. Your second appeal will take another 3 months to make a determination. As before assume you will be denied, keep working your case with your attorney. You will need to now check with your attorney and the SSI caseworker on a monthly basis.


It’s been 3 months and you have hopefully been approved. If not you will receive another packet explaining you have 30 days to file for a hearing before a judge. Your attorney will file these forms for you. This terrible ordeal will take the longest. You need to be working on your case at all times to get the right info to the judge to prove your case. All the things you have done up to now depend on proving your case to a caseworker. Now you need to prove it to a judge in person. Getting a hearing date will take between 18 months to 24 months. If you haven't written a letter of hardship do it now. You’re going to need it.


If after you sent in your letter of hardship, your have filed for your hearing and have checked with your attorney and caseworker on an ongoing monthly basis, but you still haven’t heard anything in 12 months. It’s might be time to call your Senator or Congressman to see if they can speed things up due to your hardship. Please don’t be afraid to make this call every Senator and Congressman has a dept that works with SSI cases daily and can really move you along, but you have to ask. When you talk to this person, be honest and give them just the facts of what you and your attorney have done to this point and what you need their help with. Be direct and to the point. Make notes of dates, phone calls, and whom you talked to before you call them.

Yes, this seems like a lot of work. No your attorney isn't going to do everything. No your attorney isn't going tell you what to do. They will tell you the process but not how to get things done. I had a good attorney, but I still did all the work myself, mostly my choice. I didn't want to pay them for records and consults.


I won and I did most of it on my own. It's your life you’re fighting for, so fight.

1/26/09

Christian ways to reduce Stress...

An Angel says,
'Never borrow from the future. If you worry about what may happen tomorrow and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice.'


1. Pray
2. Go to bed on time.
3. Get up on time so you can start the day unrushed.
4. Say No to projects that won't fit into your time schedule, or that will compromise your mental health.
5. Delegate tasks to capable others.
6. Simplify and unclutter your life.
7. Less is more. (Although one is often not enough, two are often too many.)
8. Allow extra time to do things and to get to places.
9. Pace yourself. Spread out big changes and difficult projects over time; don't lump the hard things all together.
10. Take one day at a time.
11. Separate worries from concerns .. If a situation is a concern, find out what God would have you do and let go of the anxiety . If you can't do anything about a situation, forget it.
12. Live within your budget; don't use credit cards for ordinary purchases.
13. Have backups; an extra car key in your wallet, an extra house key buried in the garden, extra stamps, etc.
14. K.M.S. (Keep Mouth Shut). This single piece of advice can prevent an enormous amount of trouble.
15. Do something for the Kid in You everyday.
16. Carry a Bible with you to read while waiting in line.
17. Get enough rest.
18. Eat right.
19 Get organized so everything has its place.
20. Listen to a tape while driving that can help improve your quality of life.
21. Write down thoughts and inspirations.
22. Every day, find time to be alone.
23. Having problems? Talk to God on the spot. Try to nip small problems in the bud. Don't wait until it's time to go to bed to try and pray.
24. Make friends with Godly people.
25. Keep a folder of favorite scriptures on hand.
26. Remember that the shortest bridge between despair and hope is often a good 'Thank you Jesus.'
27. Laugh.
28. Laugh some more!
29. Take your work seriously, but not yourself at all.
30. Develop a forgiving attitude (most people are doing the best they can).
31. Be kind to unkind people (they probably need it the most).
32. Sit on your ego.
33 Talk less; listen more.
34. Slow down.
35. Remind yourself that you are not the general manager of the universe.
36 . Every night before bed, think of one thing you're grateful for that you've never been grateful for before. GOD HAS A WAY OF TURNING THINGS AROUND FOR YOU.


'If God is for us, who can be against us?' (Romans 8:31)
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